Research and policy updates

Latest issue

RESEARCH AND POLICY UPDATES 2015

RPUs provide essential information on national policy developments, consultations and key research reports, alongside links to the original resources. Each RPU includes summaries of four journal articles relating to a theme around implementing the Care Act, as well as the last month’s policy, support, legislation and guidance. Research and Policy Updates are essential reading for all in adult social care.

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Latest issue

RPU 106 - July - Deprivation of Liberty Safeguards

This month's RPU is available as an open access download (PDF).

Welcome to our Research and Policy Update, RiPfA’s monthly digest of documents useful for implementing the Care Act. Each month features research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – please drop us a line at help@ripfa.org.uk if you’d like to comment.

To coincide with the launch of Law Commission’s consultation on the Deprivation of Liberty Safeguards (DoLS), we are focusing on DoLS for this issue of the RPU. The Deprivation of Liberty Safeguards (DoLS) applies to people who reside in a care home or hospital, and lack the capacity to make decisions about their care and accommodation. The Care Act legislates that councils must promote wellbeing, and the upholding of peoples’ rights is fundamental to this. The DoLS is an important protection for people who lack mental capacity to decide where to live, and social care professionals need a good understanding of them. The resources contained in this RPU highlight the challenges of working with DoLS in their current form. We would encourage readers to take part in the Law Commission’s consultation, which will inform future direction in this area.

This month’s research summaries include papers on;

Our Policy Update includes

Parliamentary Business

Consultations, Reports and Reviews

Structures, Initiatives and Guidance

RiPfA resources on working with Deprivation of Liberty Safeguards include

Deprivation of Liberty Safeguards (DoLS) consultation launch and webinar - 13 July, online, 12-1pm. Find out more about the webinar and have your say. After the 13th July, the recorded webinar will be available to view on our website.

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Previous issues

RPU 105 - June - developing integrated services

Welcome to our Research and Policy Update, RiPfA’s monthly digest of documents useful for implementing the Care Act. Each month features research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – please drop us a line at help@ripfa.org.uk if you’d like to comment.

The theme of this month’s issue is integration of health and social care services. The Care Act makes integration, co-operation and partnership a legal requirement for local authorities and agencies involved in public care. Integration of health and social care has long been identified as one of the keys to delivering better services for people.

“Integrated service delivery can be defined as (intersectoral) co-operation (co/ordination/networking) between care providers from both the health (Medical) and social care sector in order to deliver seamless continuous care to people with multiple needs as a remedy to fragmentation and discontinuity” (Mur-Veeman et al. 2003 cited in Jansen et al)

This month’s research summaries include papers on;

This month’s policy review includes;

RiPFA resources on integration include:

Strategic Briefing: Achieving outcomes through integrated working

Frontline Briefing: Supporting successful integration - improving outcomes in social care and health (CHART)

Frontline briefing: supporting successful integration – improving outcomes in social care and health

Other related resources:

Strategic Briefing: Implementing the Care Act: an overview resource

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RPU 104 - May - long term conditions

Welcome to our Research and Policy Update, RiPfA’s monthly digest of documents useful for implementing the Care Act. Each month features research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – please drop us a line at help@ripfa.org.uk if you’d like to comment.

In this edition we are focusing on long term conditions. A long term condition is a health problem that can’t be cured but can be managed by medication or therapies. There are over 15 million people in England with one. Examples of long term conditions include diabetes, Multiple Sclerosis, Parkinsons Disease, COPD, heart disease, and asthma, and they account for up to 70% of the health and social care budget. Many people with a long term condition will come into contact with local authorities. Aspects of the Care Act that will directly affect people with long term conditions include the duty to promote wellbeing; providing advice and information; assessments of care and support; and recognising carers and providing carers assessments.

This month’s research summaries include papers on;

Our Policy Update includes

Parliamentary Business

Consultations, Reports and Reviews

Structures, Initiatives and Guidance

RiPfA resources on working with people with long term conditions include:

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RPU 103 - Apr - safeguarding and domestic abuse

This month’s RPU is available as an open access download (PDF).

Welcome to our Research and Policy Update, RiPfA’s monthly digest of documents useful for implementing the Care Act. Each month features research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – please drop us a line at help@ripfa.org.uk if you’d like to comment.

The theme of this month’s issue is safeguarding and domestic abuse. Domestic abuse has been recognised as a category of abuse in the Care Act guidance (section 14.17), raising questions in practice about how best to see safeguarding and domestic abuse as not separate but parallel areas of practice. It’s important to remember that this does not mean that everyone who experiences domestic abuse will be the responsibility of safeguarding; safeguarding duties only apply to people who 

  • have care and support needs (whether or not the local authority is meeting any of those needs) and;
  • are experiencing, or at risk of, domestic abuse; and
  • as a result of those care and support needs are unable 

Due to the amount of policy and guidance that has recently developed on this issue, we’ve focussed this month’s policy section on domestic abuse too. We’d like to thank colleagues from Women’s Aid who helped in signposting us to relevant materials.

We note that many of the pieces included have a focus on women as survivors of domestic abuse, and men as perpetrators. The majority of research focuses on this gender dynamic, although guidance (e.g. the recent LGA guidance) recognises that men can be victims too.

The research featured this month includes papers on:

Additionally, the British Journal of Criminology is offering an open access, virtual issue focussed on Domestic Violence research. This collection of 18 papers illustrates how research and discourse has evolved over half a century of study. You can access the issue here:

http://www.oxfordjournals.org/our_journals/crimin/shedding_light.html

This month’s policy review includes:

RiPfA resources on safeguarding and domestic abuse

RiPfA has been working with Women’s Aid to develop a research messages workshop on the issue of safeguarding and domestic abuse. RiPfA partners can attend the workshops as part of their membership, and non-partners can purchase places at the links below:

You can also watch our recorded webinar featuring Polly Neate from Women’s Aid and Cathie Williams from ADASS discussing domestic abuse and safeguarding, here.

Other resources related to this topic:

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RPU 102 - Mar - safeguarding across the lifespan

Welcome to our Research and Policy Update, RiPfA’s monthly digest of documents useful for implementing the Care Act. Each month features research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – please drop us a line at help@ripfa.org.uk if you’d like to comment.

This month’s research theme is safeguarding across the lifespan, a theme that has come to the fore for a number of reasons:

  • The Care Act requires cooperation between Children’s and Adult services;
  • there is a recognition of the importance of continuities between the abuse someone might experience as a child, an adult and an older person (Hogg and Daniel, 2010), and that
  • ‘service groups’ can be an obstacle both in understanding and responding to abuse (Daniel and Bowes, 2010), in ways that a lifespan perspective can address

We are pleased to announce joint RiP and RiPfA Team Managers’ Workshops, ‘Lifespan safeguarding for people with learning disabilities’ as follows:

Please see also September’s RPU on transition from children’s to adult services and RiPfA’s resources on outcomes:

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RPU 101 - Feb - people who self-neglect

Welcome to our Research and Policy Update, RiPfA’s monthly digest of documents useful for implementing the Care Act. Each month features research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – please drop us a line at help@ripfa.org.uk if you’d like to comment.

The theme linking this month’s research summaries is that of supporting people who self-neglect. This has been acknowledged as a complex and challenging issue in practice for numerous years, and was recognised as a category of abuse under safeguarding adults in the Care Act. Self-neglect has historically been addressed in very different ways by different local authorities in England, and while this development may present a challenge for practice, it should also lead to greater consistency.

The research featured this month focusses on a variety of issues around self-neglect.  Firstly, we summarise a scoping study on workforce development needs for self-neglect work, which should help to inform learning and development plans around this issue. Secondly, we have a paper from the USA, which observed people with dementia who live in residential care to find out whether self-neglect was more likely when they are unsupervised. This broadens the remit of ‘self-neglect’ somewhat, and raises questions of where provider neglect can interface with self-neglect, as well as providing possible ways of preventing self-neglect from occurring in residential care settings. The third paper interviewed senior case workers from Ireland about their experience of working with people who self-neglect, and draws out issues around assessment, interventions, and ethics. Finally, we summarise another paper from the USA on multidisciplinary team perspectives on older adults who hoard, again outlining successful (and unsuccessful) approaches.

RiPfA has been working with the authors of a significant body of recent, UK-based research on self-neglect, Suzy Braye, David Orr and Michael Preston-Shoot, to produce a number of new resources related to supporting people who self-neglect. These aim to bring their brand new research messages into practice, providing useful guidance on working with this group. The research was also the first to report on the perspectives of people who self-neglect on their situation. RiPfA partners can access these resources as part of their membership, and non-partners can purchase them at the links below:

Practice tool: Supporting people who self-neglect

Research messages workshop: Supporting people who self-neglect (29th April, Bristol).

Other resources related to this topic:

We are also pleased to announce that we will be adding the Research Messages Workshop on self-neglect to our tailored support menu. This means that we can arrange for this one-day workshop to be delivered within your organisation. Please contact your Link Officer/ Account Manager for further information, or alternatively email help@ripfa.org.uk

This month’s policy review includes guidance on self-neglect from SCIE for housing staff, as well as links to Braye et al’s recent research mentioned above. It also highlights guidance on powers of entry in safeguarding cases; guidance on complying with Monitor’s requirements for integrated care; an update to the Mental Health Act 1983 Code of Practice; special guidance on the DOLS for social workers, and a CQC report on the DOLS; a report from National Voices on coordinated support for older people; a Kings Fund Report on managing quality in community health care services; and the Learning Disability Census report.  

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RPU 100 - Jan - outcomes approach

Welcome to our Research and Policy Update, RiPfA’s monthly digest of documents useful for implementing the Care Act. Each month features research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – drop us a line at help@ripfa.org.uk if you’d like to comment.

The theme linking this month’s research summaries this month is that of implementing an outcomes approach, part of an ongoing cultural shift within social care towards more effective personalisation. This is brought to the fore by the Care Act, where an approach based around someone’s individual outcomes is seen as giving the person greater control over their care, as well as sustaining their independence for longer.

The research featured this month consists of two research papers which examine the implementation of an outcomes approach, one in the assessment and review process and the other for carers of people with dementia – both noting benefits and challenges of the approach. A third paper is a critique of the Care Act and Guidance from a perspective aligned with ‘service users and their allies’. In the final paper, ‘outcomes’ are referred to in a performance management sense, looking at the effects of the international trend towards reduced resources and a more heavily monitored workforce. Drawing on research from New Zealand, Australia and Canada, it makes recommendations for how organisations can counter what the authors identify as the destructive effects of managerialism on worker identity.

RiPfA’s resources related to implementing an outcomes approach include:

 

On the outcomes theme, this month’s policy review includes the latest ASCOF (2015-16) and an update from the Meaningful and Measurable project. There is news of changes to domestic violence legislation and a consultation on data requirements under the Care Act, as well as summaries of reports on a range of topics from HSCIC, CQC, HSJ/Serco, Skills for Care, the Strategic Society Centre and the Department of Health.

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Previous issues

RESEARCH AND POLICY UPDATES 2014

RPUs provide essential information on national policy developments, consultations and key research reports, alongside links to the original resources. Each RPU includes summaries of four journal articles relating to a theme around implementing the Care Act, as well as the last month’s policy, support, legislation and guidance. Research and Policy Updates are essential reading for all in adult social care.

[Read more]

Latest issue

RPU 99 - Nov - co-production and involvement

Welcome to our Research and Policy Update, RiPfA’s monthly digest of documents useful for implementing the Care Act. Each month features research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – drop us a line at help@ripfa.org.uk if you’d like to comment.

To coincide with the publication of our latest Key Issue on Co-production, we’ve chosen a selection of research articles that reflect the theme of co-production and involvement. Co-production is the idea that people who use services equally design and deliver services with professionals. This has numerous suggested benefits, including supporting asset-based social work, increasing service capacity by reducing wasteful interventions, and providing wider societal benefits.

The literature we found detailed a mixture of analysis of theory and literature around co-production, and studies detailing work that involved people who use services. However it was difficult to find English research that evaluated co-produced services for effectiveness. The studies we summarise look to other UK and Commonwealth nations for inspiration, and include papers from Scotland, Wales and Australia:

RiPfA’s resources related to co-production include:

This month’s Policy update includes:

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Previous issues

RPU 98 - Oct - social work in mental health

Welcome to our second ‘new look’ RiPfA Research and Policy Update. We’ve acted on feedback from Partners and focused content on documents useful for implementing the Care Act. Each month will feature research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – drop us a line at help@ripfa.org.uk if you’d like to comment.

In the month of World Mental Health Day, October’s issue summarises research articles on social work practice in mental health. The Care Act’s wellbeing principle makes people’s physical and mental health and wellbeing the central concern of care and support services, while the call for improved integration bears strongly on mental health care. Coinciding with the challenges of Care Act implementation is the renewed attention on the Deprivation of Liberty Safeguards, resulting from the Supreme Court’s ‘Cheshire West’ ruling. There is also increasing evidence of a mental health beds crisis, which is impacting on the role of AMHPs (see, for example, a survey reported in Mental Health Today).  On these and related themes, this month’s research summaries are:

RiPfA’s resources related to mental health social work are

This month’s Policy update includes:

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RPU 97 - Sept - personalised transition

Welcome to our ‘new look’ RiPfA Research and Policy Update. We’ve acted on feedback from Partners and focused content on documents useful for implementing the Care Act. Each month will feature research articles that are themed on a particular issue related to Care Act implementation, as well as the last month’s policy highlights. We’d be really interested in your feedback – drop us a line at help@ripfa.org.uk if you’d like to comment.

September’s issue summarises research articles on personalised transition from children’s to adults’ services. The Care Act places new duties on local authorities around this time in people’s lives (see the Care Act factsheet, here), and our partners have told us that the issue of transitions to adult social care can be challenging to get right. We have summarised relevant research below, including papers on:

Further RiPfA resources available on this issue include:

  • Our Forum, where RiPfA Partners can log in and search for posts on this issue
  • Two learning events being held jointly with RiP:

o    Approaches to personalisation across the lifespan Knowledge Exchange Workshop (September and October 2014)

o    Lifespan safeguarding for people with learning disabilities: Team Managers’ Workshop (March 2015). 

This month’s Policy update includes:

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RPU Issue 96 - July 2014

Welcome to the ninety-sixth Research and Policy Update from research in practice for adults. Each month we will seek to highlight key policy activity within the previous month and to identify major research reports that have been released. We hope that this will provide ready access to the emergence of key initiatives and research findings. The balance across different service user groups and across different types of reports will vary from issue to issue. However in January, April, July and October each year there will be a particular focus on recent journal articles. At the request of Link Officers there is an abstract to help identify the main contents. Any queries and comments should be sent to help@ripfa.org.uk.

This month’s RPU has a focus on journal articles:

  • Factors that promote and hinder joint and integrated working between health and social care services: a review of research literature.
  • The effect of telecare on the quality of life and psychological well-being of elderly recipients of social care over a 12-month period: the Whole Systems Demonstrator cluster randomized trial.
  • The effectiveness of personal budgets for people with mental health problems: A systematic review.
  • Carers’ quality of life and experiences of adult social care support in England.
  • Inconsistences in the roles of family and paid carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care.
  • Social networks of people with mild intellectual disabilities: characteristics, satisfaction, wishes and quality of life.
  • Health and social care interventions which promote social participation for adults with learning disabilities: a review.
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RPU Issue 95 - June 2014

Welcome to the ninety-fifth Research and Policy Update from Research in Practice for Adults. Each month we will seek to highlight key policy activity within the previous month and to identify major research reports that have been released. We hope that this will provide ready access to the emergence of key initiatives and research findings. The balance across different service user groups and across different types of reports will vary from issue to issue. However in January, April, July and October each year there will be a particular focus on recent journal articles. At the request of Link Officers there is an abstract to help identify the main contents. Any queries and comments should be sent to help@ripfa.org.uk

This has been quite a slow month for relevant updates, and what there is seems to be focusing on personalisation. Pickings from the Government are particularly small, but they have issued a consultation on the regulations and guidance for implementation of Part 1 of the Care Act. There is then a paper reporting on how the Better Care Fund planning is being carried out at County level. Think Local Act Personal have developed their new partnership agreement with an expanded partnership, and SCIE have worked with The Joseph Rowntree Foundation to provide practical solutions to the challenges around providing a better life for older people with high support needs. The King’s Fund have developed and published a Patient and Family-Centred Care Toolkit, and the Joseph Rowntree Foundation have carried out an evaluation of an approach to relationship-centred care being used in Essex. There is then a paper on the use of personal budgets for employment support, one which looks at improving the mental health of people with learning disabilities, and finally a report on the impact of the bedroom tax on tenants and landlords, and a NICE evidence update on service user experience in mental health.

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RPU Issue 94 - May 2014

Welcome to the ninety-fourth Research and Policy Update from Research in Practice for Adults. Each month we will seek to highlight key policy activity within the previous month and to identify major research reports that have been released. We hope that this will provide ready access to the emergence of key initiatives and research findings. The balance across different service user groups and across different types of reports will vary from issue to issue. However in January, April, July and October each year there will be a particular focus on recent journal articles. At the request of Link Officers there is an abstract to help identify the main contents. Any queries and comments should be sent to help@ripfa.org.uk.

Although there are a range of different topics covered in this month’s RPU, a main theme appears to be the future of health and social care especially in relation to the elderly and long-term conditions. We start with a Government policy paper on Transforming primary care: Safe, proactive, personalized care for those who need it most which sets out proposals for a new approach to care for the elderly and those with long-term conditions. This followed by a guidance paper about reducing the need for restrictive interventions and then a policy paper building on the 2013 call for action to find ways to help people live well for longer: National support for local action to reduce premature avoidable mortality. The final Government paper is an overview of roles and responsibilities in health and care services with regards to safeguarding adults. Our first non-government document is entitledThe Generation Strain: Collective Solutions to Care in an Ageing Society” and this followed by information from Think Local Act Personal about Personal Health Budgets: including people with learning disabilities, and news of a webinar being held on the same topic. The King’s Fund Commission on the future of health and social care in England have published their interim report, “A new settlement for health and social care.” There are then two reports from the Joseph Rowntree Foundation – “Caring and earning among low-income Caribbean, Pakistani and Somali people” and Learning for care homes from alternative residential care settings. And finally, two brief pieces of news about Think Local Act Personal’s jargon buster and SCIE’s adult safeguarding guide for housing staff.

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RPU Issue 93 - April 2014

Welcome to the ninety-third Research and Policy Update from Research in Practice for Adults. Each month we will seek to highlight key policy activity within the previous month and to identify major research reports that have been released. We hope that this will provide ready access to the emergence of key initiatives and research findings. The balance across different service user groups and across different types of reports will vary from issue to issue. However in January, April, July and October each year there will be a particular focus on recent journal articles. At the request of Link Officers there is an abstract to help identify the main contents. Any queries and comments should be sent to help@ripfa.org.uk.

This month’s RPU has a focus on journal articles:

  • A qualitative exploration of the identities of parents with a learning disability.
  • Good practice in social care: the views of people with severe and complex needs and those who support them.
  • Carers’ roles in personal budgets: Tensions and dilemmas in front-line practice.
  • Daring to tell: the importance of telling others about a diagnosis of dementia.
  • Older people’s perceived causes of and strategies for dealing with social isolation. Awareness of risk factors for loneliness among third agers.
  • Are we Valuing people’s Choices now? Restrictions to mundane choices made by adults with learning disabilities?
  • Cutting down: insights from qualitative studies of smoking in pregnancy.
  • The controversies of choice and control: Why some people might be hostile to English social care reforms. 
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RPU Issue 92 - March 2014

Welcome to the ninety-second Research and Policy Update from Research in Practice for Adults. Each month we will seek to highlight key policy activity within the previous month and to identify major research reports that have been released. We hope that this will provide ready access to the emergence of key initiatives and research findings. The balance across different service user groups and across different types of reports will vary from issue to issue. However in January, April, July and October each year there will be a particular focus on recent journal articles. At the request of Link Officers there is an abstract to help identify the main contents. Any queries and comments should be sent to help@ripfa.org.uk. 

This month’s RPU starts with a summary of the mental health crisis concordat which sets out a vision for mental health crisis care supported across health and social care. There are then two brief pieces of news about the government’s Better Care Fund Events, and a new film from SCIE about the dementia gateway. There are two consultations this month.One is from the Department of Health looking at the new offence of ill-treatment or willful neglect, and a call from CQC for people to share their experience of mental health crisis care. This is then followed by two papers from the King’s Fund, one looking at making our health and care systems fit for an ageing population, and the other looking at community services – how they can transform care. There is then an evaluation of the Making Every Adult Matter pilots, followed by a report from the Joseph Rowntree Foundation looking at whether excessive paperwork in care homes undermines care for older people. The NSPCC have published an interim evaluation of their Caring Dads, Safer Children programme, and this is then followed by a report looking at the needs of the Future Care Workforce, and to finish, a report from St. Mungo’s looking at women’s homelessness entitled Rebuilding shattered lives.

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RPU Issue 91 - February 2014

Welcome to the ninety-first Research and Policy Update from research in practice for adults. Each month we will seek to highlight key policy activity within the previous month and to identify major research reports that have been released. We hope that this will provide ready access to the emergence of key initiatives and research findings. The balance across different service user groups and across different types of reports will vary from issue to issue. However in January, April, July and October each year there will be a particular focus on recent journal articles. At the request of Link Officers there is an abstract to help identify the main contents. Any queries and comments should be sent to info@ripfa.org.uk

This month’s RPU starts with three reports from the Department of Health. The first is a mental health policy paper looking at the priorities for essential change in mental health. This is followed by the recent report on “Preventing suicide in England: One Year on”, and then a “joint statement of intent” from industry and government about social care funding. There is then a consultation from the Department of Health on proposals to change CQC registration regulations in line with the new Fundamental Standards. We then have a series of reports on issues relating to older aged people. Firstly, a summary of the report on the Rowntree Foundation’s programme looking into “A better life: valuing our later years”, out of which has come a pamphlet about support options for older people, entitled “Know your choices – plan your support.” There are then two research reports, one reporting on evidence from seven international case studies into how to provide integrated care for older people with complex needs, and a policy research paper looking at issues needed to enable healthy ageing in the 21st Century. The final two papers relating to older people look at partnership working between GPs, care home residents and care homes, and then a set of case studies from “Dementia-friendly Yorkshire.” A change of topic for the last two papers, firstly the King’s Fund quarterly monitoring report, and lastly a report from the Joseph Rowntree Foundation looking at how risk is considered and managed in community action

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RPU Issue 90 - January 2014

Welcome to the ninetieth Research and Policy Update from research in practice for adults.

Each month we will seek to highlight key policy activity within the previous month and to identify major research reports that have been released. We hope that this will provide ready access to the emergence of key initiatives and research findings. The balance across different service user groups and across different types of reports will vary from issue to issue. However in January, April, July and October each year there will be a particular focus on recent journal articles. At the request of Link Officers there is an abstract to help identify the main contents. Any queries and comments should be sent to help@ripfa.org.uk.

This month’s RPU has a focus on journal articles. It includes the following:

  • Attributing Outcomes to Social Policy Interventions – ‘Gold Standard’ or ‘Fool’s Gold’ in Public Policy and Management?
  • Who’s challenging who? Changing attitudes towards those whose behaviour challenges.
  • Can you tell what it is yet? Public attitudes towards the “Big Society”
  • Carers’ quality of life and experiences of adult social care support in England
  • Effective support for those who are “hard to engage”: a qualitative user-led study.
  • The importance of music for people with dementia: the perspectives of people with dementia, family carers, staff and music therapists.
  • Planning, facilitating and evaluating a bereavement group for adults with learning disabilities living in the community.
  • Bouncing back? Recession, resilience and everyday lives.
  • A scoping review of personalisation in the UK: approaches to social work and people with learning disabilities.
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RESEARCH AND POLICY UPDATES 2013

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Latest issue

RPU Issue 89 - November 2013

This month’s RPU includes:

Two pieces of news about the Adult Social Care Outcomes Framework:

  • an online map has been produced of the data from 2012/13
  • the Adult Social Care Outcomes Framework for 2014/15has been published.

 

Publication of The Mandate for NHS England 2014/15

Centre for Mental health report looking at barriers to employment for people with mental health problems

Alzheimer Scotland report outlining their 8 Pillar Model of Community Support for people with dementia

SCIE document about co-production and how to do it

SCIE online tool about integrating services

Health and Wellbeing Boards one year on (King’s Fund)

Report summary for the Guardian and Department of Health looking at attitudes to homecare in England

First report in a proposed series on Real Life Reform

News about the Loneliness Resource Pack (Joseph Rowntree Foundation)

Review on how to deliver better services for people with long-term conditions (King’s Fund)

Journal article looking at what English local authorities are doing to facilitate personalised and flexible care for older people

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Previous issues

RPU Issue 88 - October 2013

  • Resettlement of individuals with learning disabilities into community care: A risk audit.  (2013) Roger Elis, Elaine Hogard and David Sines.  Journal of Intellectual Disabilities 17:252.
  • ‘She’s usually quicker than the calculator’: financial management and decision-making in couples living with dementia. (2013) Geraldine Boyle. Health and Social Care in the Community 21(5), 554 - 562.
  • Partnership working and outcomes: do health and social care partnerships deliver for users and carers?  (2013) Alison Petch, Ailsa Cook and Emma Miller.  Health and Social Care in the Community 21 (6), 623 – 633.
  • Why do some people with intellectual disability engage in offending behaviour and what can we do about it?  Editorial. (2013).  William R. Lindsay, Richard P. Hastings, Nigel Beail. Journal of Applied Research in Intellectual Disabilities, 26, 351 – 356.
  • Contact with primary care: The experience of people with intellectual disabilities. 2013. Jonathan Perry, David Felce, Mike Kerr, Stuart Bartley, Judith Tomlinson, Janet Felce. Journal of Applied Research in Intellectual Disabilities. Early view
  • Inherently risky?: Personal budgets for people with dementia and the risks of financial abuse: findings from an interview-based study with adult safeguarding coordinators. (2013). Jill Manthorpe and Kritika Samsi. British Journal of Social Work 43, 889- 903.
  • Improving nursing home care for dementia: is the environment the answer?  (2013) Anne Margriet Pot.  Aging and Mental Health 17:7, 785 – 787.
  • Difficulties in implementing supported employment for people with severe mental health problems. (2013). Jed Boardman and Miles Rinaldi.  The British Journal of Psychiatry 203: 247 – 249.
  • Insights and principles for supporting social engagement in rural older people.  J Walker et al. (2013). Ageing and Society 33. 938 – 963.
  • Older people and human rights in home care
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RPU Issue 87 - August 2013

This month’s RPU has a focus on journal articles.

  • Money, finance and the personalisation agenda for people with learning disabilities in the UK: some emerging issues.
  • Telecare for an elderly population?
  • Systematic review of the effects of telecare provided for a person with social care needs on outcomes for their informal carers.
  • Effect of telecare on use of health and social care services: findings from the Whole Systems Demonstrator cluster randomised trial.
  • Supported housing for people with Down’s syndrome.
  • The full spectrum of ethical issues in dementia care: systematic qualitative review.
  • Organisational rules and discretion in adult social work
  • A qualitative exploration of the views and experiences of family court magistrates making decisions in care proceedings involving parents with learning disabilities.
  • The psychological impact of abuse on men and women with severe intellectual disabilities.
  • The stories of older parents of adult sons and daughters with autism: a balancing act.
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RPU Issue 87 - September 2013

This month’s RPU starts with news of a strategy document from government Fulfilling Potential – making it happen, and then an update on adult safeguarding with a new Statement of government policy on adult safeguarding.  There is then a document from Employers and Carers and the Department of Health outlining findings from a task force looking at how to support working carers.  This is followed by three consultations.  The first is about the practical issues that will need to be addressed in changes to how care is to be funded - Caring for our future.  The second is an online public consultation asking questions about “How can we improve health and care for vulnerable older people?” and the last is a consultation response to the document outlined earler, Fulfilling Potential – Making it happen; better working with disabled people.  We then have a document from the Alzheimer’s society entitled Building dementia-friendly communities: a priority for everyone, which looks at recent views about trying to be part of the community when living with dementia.  Two articles  then follow from the Joseph Rowntree Foundation, the first on whether the universal credit system will “enable households to reach a minimum income standard”, and the second looking at Attitudes of different generations to the welfare system.  Finally, a journal article on personalisation of adult social care: self-directed support and the choice and control agenda.

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RPU Issue 86 - July 2013

This month’s RPU has a focus on journal articles.

  • Money, finance and the personalisation agenda for people with learning disabilities in the UK: some emerging issues.
  • Telecare for an elderly population?
  • Systematic review of the effects of telecare provided for a person with social care needs on outcomes for their informal carers.
  • Effect of telecare on use of health and social care services: findings from the Whole Systems Demonstrator cluster randomised trial.
  • Supported housing for people with Down’s syndrome.
  • The full spectrum of ethical issues in dementia care: systematic qualitative review.
  • Organisational rules and discretion in adult social work
  • A qualitative exploration of the views and experiences of family court magistrates making decisions in care proceedings involving parents with learning disabilities.
  • The psychological impact of abuse on men and women with severe intellectual disabilities.
  • The stories of older parents of adult sons and daughters with autism: a balancing act.
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RPU Issue 85 - June 2013

This month’s RPU starts with a document from the National Collaboration for Integrated Care and Support entitled Integrated Care: Our Shared Commitment. There are then two short pieces about dementia – the first being the announcement that the NHS Innovation Challenge Prize for Dementia is open for entries, and the next being the annual report of the Prime Minister’s Challenge on Dementia. There are then two sets of information about the Care Bill, the first being a summary from the Government about how the Care Bill fits to the Francis Report and the Caring for our Future White Paper and the second a series of factsheets about the Care Bill.  The Government section finishes with information about the Department of Health 2013-14 Corporate Plan. Think Local Act Personal have commissioned a National Personal Budgets Survey,which is summarized here, and that is followed by another survey report  - the Personal Social Services Survey of Adult Carers in England. Mind have published a report titled Personal budgets in England – making them work in mental health. There are then two reports from SCIE.  Firstly, a report into maximising the potential of reablement, and then a Practice enquiry into supervision in a variety of adult care settings where there are health and social care practitioners working together. Finally, we outline a report from a group of charities calling for investment in preventative care and support for disabled adults.

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RPU Issue 84 - May 2013

Firstly this month, a number of documents and new initiatives from the Government.  The NHS Choices website now includes new Care profiles, allowing people to look up and compare different residential and home care services. There is also news on the new dementia quality standard and commissioning guide, published by NICE, and also a useful document which explains the new Health and Care System. Finally from the Government, there is the publishing of the code of conduct and national minimum training for healthcare support workers and adult social care workers in England.

There are then two documents about dementia, one abouthow social workers can make personal budgets work for people with dementia, and the 2013 Alzheimer’s society report entitled Dementia 2013: The hidden voice of loneliness.

Think Local Act Personal have published some new “Making it real” tools and there is an interesting document on the transition to adult services and adulthood for young people with autistic spectrum conditions. SPRU have published their evaluation of the personal health budget pilot programme, and ADASS have issued a press release about their latest survey of directors which focuses on social care funding, and is subtitled “a bleak outlook is getting bleaker”.  There are then documents onPersonal Independence Payment user-centred design and strengths based approaches to social care and another on Empowering Communities, Protecting Victims: Summary report on the community trigger trials. Finally a document from Shelter about the experiences of families claiming housing benefit during a time of cuts and changes to benefits

 

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RPU Issue 83 - April 2013

Welcome to the eighty third Research and Policy Update from research in practice for adults. This month’s RPU has a focus on journal articles and includes the following:

  • The formal support experiences of family carers of people with an intellectual disability who also display challenging behaviour and/or mental health issues: What do carers say?
  • Personal assistance: what happens to the arrangement when the number of users increases and new user groups are included?
  • “The unwilling and the unwell”? Exploring stakeholders’ perceptions of working with long-term sickness benefits recipients.
  • Managing identity in early-stage dementia: maintaining a sense of being valued.
  • Why carers of people with dementia do not utilise out-of-home respite services.
  • Self-directed support and people with learning disabilities: a review of the published research evidence
  • The effectiveness of inter-professional working for older people living in the community: a systematic review.
  • Anger management interventions for adults with learning disabilities living in the community: a review of recent (2000 – 2010) evidence. Reflections on change: supporting people with learning disabilities in residential services.
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RPU Issue 82 - March 2013

 

The Fifth Year of the Independent Mental Capacity Advocacy (IMCA) Service report provides statistical information by local authority area on IMCA referrals in areas such as care reviews and adult safeguarding and comments on the trends emerging, with recommendations for improvements.

The government’s Cardiovascular Disease Outcomes Strategy makes a call for sustained and co-ordinated multi-agency action to prevent and manage the disease.  For local authorities, there is a clear link with joint-working to reduce health inequalities and improve public health.

The Personal Health Budgets Winter update / newsletter keeps the momentum going for the extension of personal health budgets and the development of joint health and social care budgets.  Views are also invited on changes to direct payments for healthcare as part of a Consultation (details below).

Infection Prevention and Control in Care Homes is a detailed and practical resource developed with the Health Protection Agency and Care Quality Commission.  It is intended principally for care home managers, but will also assist commissioning and contracting managers and public health in undertaking risk assessments and developing policies.

The government has published the responses sent in response to the Consultation on Strengthening the NHS Constitution.

The Care Quality Commission report, Not Just A Number gives an overview based on the national home care inspection programme and makes recommendations in areas such as late or missed calls, lack of continuity of care workers, and poor care planning.

The second Care Quality Commission Care Update provides an overview of performance based on inspections across the NHS, adult social care and dental care. It features a Focus on Dementia, which highlights the ways in which the health and social care system is struggling to cope with the rise in dementia.

Improving Later Life – Understanding the Oldest Old from Age UK is a lively and thought-provoking summary of the evidence about the experiences and needs of people who are 85 and over, a poorly understood and under-researched group, but one that is growing.

 

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RPU Issue 81 - February 2013

The Government has published the results of several 2012 consultations:

  • Responses to the draft Care and Support Bill consultation
  • Government response to Liberating the NHS: No Decision About Me Without Me
  • Responses to the consultation regarding local government scrutiny

In addition, the Government’s Final Report into Winterbourne Hospital sets out a programme of action for reducing the number of vulnerable people living in hospital settings and for transforming services to meet the needs of people with challenging behaviour. The programme is supported by over 50 partners and progress will be reviewed in one year’s time.

The Final Report of The Independent Inquiry Into Care Provided By Mid Staffordshire NHS Foundation Trust(known as The Francis Report and shown under other Reports below) is a comprehensive and damning analysis of the poor care in an NHS hospital which led to an estimated 400-1,200 deaths over a period of four years.  It calls for radical changes in NHS culture and leadership.

The National Quality Board (NQB), which brings together the national organisations across the health system, has also published a final report - Quality in the new health system – maintaining and improving quality from April 2013 - and sets out how quality will be maintained in the future.

The 2013/14 Outcomes Framework for Social Care has been updated and expanded to align it more closely to the Outcomes Frameworks for the NHS (and for Public Health), and to ensure that all health and social care services are working more effectively.

The second annual report, Improving Outcomes: A Strategy for Cancer, sets out actions to further improve cancer survival rates and the experience of patients, and to reduce the variations felt across the country. The Cancer Services Coming of Age report summarises a series of pilot sites that tested whether improved assessments of older cancer patients would result in improved access to appropriate cancer treatment, based on need and not age.

The Personal Budgets Update and Toolkit announces the Government’s intention to roll-out the scheme nationally following the three-year pilot and evaluation. Integration of health and social care personal budgets will be an important component for the future of social care.

The Cost of Troubled Families, a report produced by Department of Communities and Local Government (DCLG) examines the financial cost of troubled families (leaving aside the human cost) to local agencies, including local authorities, health services and the police. The report uses examples from a number of different areas. Working with Troubled Familiesprovides evidence and good practice for Family Intervention.

The Care Quality Commission (CQC) State of Health Care and Adult Social Care in England report outlines findings and general themes from over 13,000 inspections during 2011/12.

The Equality and Human Rights Commission inquiry into Home Care Of Older People provides information in simple language about what to expect from a home care service that is respectful of human rights.

The National Centre for Post-Qualifying Social Work at Bournemouth University has produced the SAFE Tool andSafeguarding Adults at Risk Workbook to support practice in safeguarding adults.

Stronger Together: How Health and Wellbeing Boards Can Work Effectively With Local Providers, from the NHS Confederation, makes a case for harnessing the influence, experience and skills of local providers to help improve the health outcomes of communities.

The Joseph Rowntree Foundation is disseminating findings from several research projects into Housing with Care for Older People, including an evidence review, practice examples, a consideration of quality, choice and affordability, and issues of boundaries and responsibilities.

The report by The Audit Commission Tough Times 2012: Councils’ financial health in challenging times examines how councils have coped in 2011/12, and the prospects for managing budgets in the next few years.

The only consultation featured in this month’s issue is on proposed new topics for the National Institute for Health and Clinical Excellence (NICE) Quality Standards in Social Care.

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RPU Issue 80 - January 2013

 

  • This month’s RPU has a focus on journal articles, covering the following:
  • The views of people who care for adults with Down’s syndrome and dementia: a service evaluation.
  • Engaging Community Support in Safeguarding Adults from Self-Neglect.
  • The experiences of neighbour, volunteer and professional support-givers in supporting community dwelling older people.
  • Adults with intellectual disabilities and challenging behaviour: the costs and outcomes of in and out-of-area placements.
  • Transfer of training: the missing link in training and the quality of adult social care.
  • What things make people with a learning disability happy and satisfied with their lives: an inclusive research project.
  • How do people described as having a learning disability make sense of friendship?
  • Engaging with involuntary service users in social work: findings from a knowledge exchange project.

 

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2012

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Latest issue

RPU Issue 79 - November 2012

From 1 October 2012, new provisions came into force under The Equality Act 2010 making it illegal to discriminate unjustifiably on the grounds of age when delivering goods and services, and introducing a duty on public bodies to promote age equality.  New guidance is available to help the health and social care system prepare to meet the new age equality and discrimination legislation. The Act does not affect the positive use of age; for example, in providing, commissioning and planning services.

Healthwatch England, the new independent consumer champion for health and social care in England, was also launched on 1 October 2012, and local Healthwatch organisations will be in place from April 2013.

The role of the National Institute for Health and Clinical Excellence (NICE) will expand from April 2013 to include social care, and to help drive improvements in social care.

The Hospital 2 Home discharge pack aims to make it easier for health and social care professionals to support older patients in returning home safely after a hospital stay, reduce the risk of re-admission to hospital and improve the experience of returning home for both older patients and their carers.

The government is also inviting bids for capital funding to provide new and modernised homes designed to meet the needs of older people and people with disabilities. Housing plays a critical role in helping older people and disabled adults to live as independently as possible.

The next phase of the national Dementia Challenge includes a range of measures including investment in research, support to GPs, earlier diagnosis and better information to people with dementia and their carers. Environment and design have been proven to play an important role in reducing the distress of people with dementia and bids are also invited for investment in care homes and wards that meet the design principles tested in The King’s Fund pilots. Meanwhile, the report A stronger collective voice for people with dementia from The Joseph Rowntree Foundation summarises the Dementia Engagement & Empowerment Project (DEEP) and offers specific ways forward for organisations to engage with people with dementia and involve them in service design.

The fourth annual report on progress in delivering the 2008 End of Life Care Strategy confirms that more people than ever have been able to die where they usually live – whether at home, or in a care home – and the focus will continue to be on supporting people to be cared for and to die in their place of choice.

Developing Care Markets for Quality and Choice (DCMQC) is a wide-ranging support programme in collaboration with the Institute of Public Care (IPC) to help authorities meet the new duty in the draft Care and Support Bill.  Workshops are taking place in November and December.

The Deprivation of Liberty Safeguards (DOLS) funding factsheet outlines the funding available to support the new local authority responsibilities (transferred from PCTs) for assessing and authorising a Deprivation of Liberty in a hospital setting from 1 April 2013.

The national multi-agency Cold Weather Plan 2012 aims to prepare for the effects of winter weather on people’s health and includes Action Cards for staff in health, social care and local authorities, including commissioners and care professionals.

My home life: promoting quality of life in care homes from The Joseph Rowntree Foundation outlines the findings from the My Home Life project and makes recommendations for care home owners and providers, care home managers, commissioners and regulators and the government to promote voice, choice and control for residents.

The run-up to Christmas is traditionally a quiet time for consultations and there are no consultations featured in this issue.

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